Skip to content

Monthly Archives: December 2010

The New Year

We had a wonderful Christmas this year.  It was Alex’s first Christmas, but at 10 months old he’s still pretty clueless about how the presents thing works.  He was more interested in playing with the packages or the paper or his big brother’s presents.  But Robert had a great time.  He was interested in each individual gift and wanted to play with each item.  It took four days to convince him to open all of his presents because he was more interested in playing with what he already had!  That’s definitely a good thing, although I have never seen a kid do that before.

Now that Christmas is over, we are looking toward the New Year with fear and hope.  In October we took Robert to see a surgeon and the surgeon said that Robert needed surgery within 3 to 6 months, although 6 months would be pushing it.  Christopher and I were shocked to hear that news.  We thought that we still had a year or two before the dreaded surgery.  But now it is on the calendar- January 12.  Two weeks from tomorrow.  Next Friday we will bring Robert to the hospital for his pre-op appointment and the following Wednesday we will bring him back for his surgery.  This is the scariest thing I have ever had to deal with.  I was terrified when, hours after birth, the doctors told me that Robert had a heart condition that may need surgery and I was terrified when he actually had that surgery, but looking back, that surgery was nothing compared to what he will face on the 12th.  This is serious business.  The surgeon will take out Robert’s aortic valve, replace it with Robert’s pulmonary valve, and then use a donor valve to replace Robert’s pulmonary valve.  Ideally, this surgery will get Robert through the next 10 to 20 years, but he will need another surgery in the future.  We’ve been told by all of Robert’s doctors that this is the best heart condition to have but that doesn’t make it any less scary for Christopher and me or any less stressful for Robert.  We are blessed and grateful that this heart problem is the only problem Robert has- usually patients with heart disease also have problems with their lungs or other organs- but when the doctor looked at us and told us that our son was in the beginning stages of heart failure, those things were very difficult to think about.  So this New Year we are scared, but we are hopeful because we know that God is good and that all things work together for good to those who love God and who are called according to His purpose (Romans 8:28) and that is the promise that we are clinging to.  We beg you for prayers for our son and for us as we go through this with him, and we thank our family and our friends who have been our support and have been offering up prayers for our son every step of the way.