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Second Wednesday Update

Christopher guest posting again . . .

As Rashell said, today has been a difficult day, in some ways, much more difficult than yesterday. Yesterday, the nervousness and apprehension was ours, but Robert was peacefully sedated most of the day. But today, Robert woke up to his first day of recovery, less than 24 hours removed from having his chest lacerated, having his ribcage separated and wired back shut, spending four hours on a heart-and-lung machine, and having been on a ventilator for most of yesterday. For a 5-year-old, that is–to quote Robert–“not fun at all.” It is also very difficult to make a 5-year-old understand that it is good for him that we make him do things he doesn’t want to do, which cause him incredible amounts of pain, for no apparent reason, just as he has finally gotten over the last wave of pain.

However, as difficult as it has been for all of us, Robert has made incredible progress today, and we have seen a lot of travel along the continuum from morphine-induced-thousand-yard-stare to our happy, insightful, sweet, loving Robert boy. He received a plush helicopter toy and a Cars-themed mylar balloon from some dear friends from out of state, and they really brightened his countenance. He also got to “unplug” quite a bit: the nurses removed his forehead SpO2 sensor, foley catheter, central line, and a peripheral IV. He still has one IV line, a finger SpO2 sensor, a blood-pressure cuff, a couple of other contact sensors, and two chest tubes, but he does look much less “bionic” than even this morning.

Robert has gotten a transfer order so he can leave the PCICU and go out onto the “floor,” so he will be getting his own room in the Batson tower just as soon as one becomes available. We are hoping that will be tomorrow (Thursday) morning or afternoon. When that happens, it should help us improve Robert’s experience quite a bit. We’ll be able to stay with him at all times and won’t have to leave the area to go to the bathroom, eat, or sleep. We’ll have more control over the TV and will be able to do more activities with him. And we’ll be able to entice him with the “Flintstone” cars on the sixth floor to get him to walk and move around.

If history (and today’s progress) is any indication, we are expecting tomorrow to be a much better day, and we look forward to seeing even more of Robert’s warm, cheerful disposition returning. Thank you all for your continued prayers and support.

One Comment

  1. Judy Schneider wrote:

    Praying for you all. We hope the room will be available soon. We’re relieved Robert is making progress.

    Wednesday, February 19, 2014 at 7:51 pm | Permalink

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